SharedStories: Longitudinal Insights into the Patient Experience

Patient insights are often fragmented — a single survey, an interview, a focus group. These traditional approaches provide valuable input, but they rarely capture the reality of living with a disease over time. 𝗦𝗵𝗮𝗿𝗲𝗱𝗦𝘁𝗼𝗿𝗶𝗲𝘀 𝗽𝗿𝗼𝘃𝗶𝗱𝗲𝘀 𝗮 𝗹𝗼𝗻𝗴𝗶𝘁𝘂𝗱𝗶𝗻𝗮𝗹 𝗮𝘀𝘀𝗲𝘀𝘀𝗺𝗲𝗻𝘁 𝗼𝗳 𝘁𝗵𝗲 𝗽𝗮𝘁𝗶𝗲𝗻𝘁 𝗲𝘅𝗽𝗲𝗿𝗶𝗲𝗻𝗰𝗲.

We’ve been running a  𝗹𝗼𝗻𝗴-𝘁𝗲𝗿𝗺 𝗽𝗮𝘁𝗶𝗲𝗻𝘁 𝗰𝗼𝗺𝗺𝘂𝗻𝗶𝘁𝘆 for more than three years across the US and EU5 in a rare disease, giving our client detailed insights into the evolving patient journey. By engaging consistently in a trusted environment, patients share how their experiences, challenges, and motivations evolve over time — creating a depth of understanding that goes well beyond a one-off study.

Through bi-monthly activities and multimedia outputs, SharedStories translates these real-world experiences into 𝘀𝘁𝗿𝗮𝘁𝗲𝗴𝗶𝗰 𝗶𝗻𝘀𝗶𝗴𝗵𝘁𝘀 𝗽𝗵𝗮𝗿𝗺𝗮 𝗰𝗼𝗺𝗽𝗮𝗻𝗶𝗲𝘀 𝗰𝗮𝗻 𝗮𝗰𝘁 𝗼𝗻 — shaping patient engagement strategy, informing support programmes, and responding to emerging needs as they arise.

With SharedStories, the 𝗽𝗮𝘁𝗶𝗲𝗻𝘁 𝘃𝗼𝗶𝗰𝗲 𝗯𝗲𝗰𝗼𝗺𝗲𝘀 𝗮 𝗱𝘆𝗻𝗮𝗺𝗶𝗰 𝗿𝗲𝘀𝗼𝘂𝗿𝗰𝗲, helping companies stay connected to the real-world journey and design strategies that resonate where it matters most.

Contact Lucia Romanelli to learn more.