Leaders in rare disease insights

Since our founding, we have conducted global market research and insights generation in more than 25 rare diseases for our clients. Whether in-depth ethnographic patient journey research, behavioural science, or quantitative global brand performance trackers, Elma is highly experienced with and committed to rare disease research.

In many engagements on rare conditions, we’ve seen the challenges first-hand: delayed diagnosis, limited access, and the urgent need for earlier intervention. These themes were central to our recent Bridging the Gap podcast episode, featuring Bonnie Schneider, co-founder of the IgA Nephropathy Foundation. Bonnie shares her journey from mother to global advocate and calls for greater awareness, advocacy and equity in care.
Listen here: https://lnkd.in/d4k4Ssez

Contact Giovanni or Niall if you are interested in understanding more about our experience in rare diseases.